Title: Exploring the value of the ‘F-Words for Child Development’
Lead Researcher and Affiliation: Dr Hazel Killeen University of Galway -
The 'F-words' approach encourages clinicians and families to focus on activities that are important to the child and family and frame therapy goals around these on six key areas of child development, function, family, fun, friends, fitness and future. Recognising that no one factor is more important than another, the project hopes to encourage people in the childhood disability field to adopt this way of thinking and apply these concepts in their work with children with disabilities and their families
Title: An exploration of the perspectives of paediatric physiotherapists and occupational therapists who refer to specialised seating services, on the use of and provision of custom contoured seating systems for children with complex needs.
Lead Researcher and Affiliation: Mary McDonagh, Ulster University, For further information please contact firstname.lastname@example.org
Title Unmet Health Needs among Young Adults with Cerebral Palsy in Ireland: A Cross-Sectional Study.
Lead Researcher and Affiliation: Jennifer Ryan, Royal College of Surgeons
This study investigated the unmet health needs of young adults with cerebral palsy (CP) to understand how best to develop appropriate health services. This study aimed to describe unmet health needs among young adults with CP in Ireland and examine if these differed between young adults who were and were not yet discharged from children's services. In this cross-sectional study, young adults with CP aged 16-22 years completed a questionnaire assessing unmet health needs. Published research at https://pubmed.ncbi.nlm.nih.gov/36013083/
Title: HSE Personalised Budgets Demonstration Evaluation,
Lead Researcher and Affiliation: Dharragh Hunt National Disability Authority
Personalised Budgets are one way in which disabled people who use social care service can have a say in how their support is organised. Progress in the area of Personalised Budgets would contribute to Ireland’s obligations under the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), in particular, Article 19 the right to live independently and be included in the community. The service users of the CRC engaged in this research with the National Disability Authority (NDA) in the evaluation of the personalised budgets demonstration project in Ireland. For more information on this project visit https://nda.ie/transforming-disability-services/personalised-budgets
Title: My Voice: Engaging Young People with Intellectual Disabilities in Research
Lead Researcher and Affiliation: Dr Emma Nicholson, Dublin City University
It is very important that all members of society can take part in research activities so that researchers can develop projects that will provide meaningful outcomes. This study supported a group of young people to develop research skills by acting as co-researchers in a research project. The development of these skills can help young people to participate in future research projects, while also providing researchers with a better understanding of how to ensure the voices of this population are heard in future research.
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