Neuromuscular Clinic

The neuromuscular clinic is a National Consultant led multidisciplinary service.  This service is for children up to 18 years who present with a neuromuscular disorder, including muscular dystrophy, spinal muscular atrophy, and other conditions.  Children with neuromuscular conditions need an integrated pathway of care and this clinic works with a variety of other CRC specialist services including orthopaedics and ATSS, in addition to services offered in the acute setting.  Support and advice to families, carers and local CDNTs is integral in ensuring that children are supported in their communities.

MDT Team: Consultant Neurologist, Clinical Nurse Specialist, Physiotherapist, Occupational Therapist, Psychologist, Social Worker

General Referral Criteria:

  • Muscular Dystrophy, DMD, Beckers
  • Spinal Muscular Atrophy
  • Friedreich’s Ataxia

General Exclusion Criteria:

  • Adult Neuromuscular Conditions
  • Motor Neuron Disease

CRC Neuromuscular Clinic is part of CHI National Neuromuscular Service which also operates out of TSCUH/OLCHC/TUH

NM Prioritisation rational

    • Newly diagnosed babies SMA type 1
    • New and ongoing Spinraza assessments for children commencing treatment.
    • Newly diagnosed children with muscular dystrophy, SMA
    • Pre and post orthopaedic interventions
    • Regular consultative follow up at MDT clinics

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